Friday, May 29, 2009

What's going on

Likely, chemo will be starting on Monday. They still don't know exactly what the infection is. The oncologist is hoping that the infection can be treated with a different medicine than Vancomycin, because it would be better for the kidney.

Ah, yes...the kidney.

I also learned something very important today. I don't know why I didn't get this before. Basically, this infection and the last one seem to be from the bacteria living on The Boy's body. We all have it. But it can get in through his port. Or through his mouth. Or whatever. And with low immunity, he can't fight it off well enough. Possibly, those times when he has had fevers for an hour that went away were these infections that didn't stick around long enough to be treated. Every time he has been is from himself. We have done a great job of keeping him from other's infections. But if something is just on him, then that's the breaks.

I truly hope that this is just an unlucky streak and that our lives are not going to be like this all the time.

The Boy took his medicine again for the nurse. She had him sitting up and was holding him under the chin. She gave him something to do, pushing buttons on her calculator. And she gave 1 mL at a time, leaving the syringe in his mouth, telling him to swallow and waiting as long as necessary. She was very stern with him but not mean, and she got it to work.

The Boy is also getting blood again. Some of this is due to IV fluids diluting everything. Mostly, it is his body using up resources to fight infection. So we are waiting on that.

So that's about that.


Carrie said...

I am saying some extra prayers for health and strength for you and the family tonight... Still can't imagine how hard it is for you, but you seem to be so strong...You have lots of people thinking about you.

JC said...

Yay for the nurse! Glad she was able to get it in him. I hope your streak of fevers/infections comes to a halt. You're always on my mind. :)

Rebecca said...

I am glad that the nurse is able to get the meds in him. I've had my first run in with meds and a little on today. Not fun. So, I cannot even begin to imagine what it must be like on a frequent basis.