Friday, July 17, 2009

Something wasn't right

The Boy had his port replaced today. The surgery itself was scheduled fine, unlike the removal. He took an awfully long time to wake up. His blood pressures were ridiculously high.

He was swollen. He was breathing poorly. His oxygen saturation was low. Even at 2-ish, which was when we arrived after Tiny Guy's appointment.

Diversion: Tiny Guy had his two week checkup (2 days early). He is six ounces heavier and an inch taller than what he was at birth.

The Boy was taken for a chest X-ray to figure out what was with the breathing. And to be sure that the port was where it was supposed to be. The problem was, basically, too much fluid retention. So, Lasix to the rescue.

Grandma reports that he drank some juice and that his last BP was at an acceptable level.

It was a VERY hard morning for Musical Daddy. Fortunately his father was there in the morning, and a volunteer from Chai Lifeline, a younger gentleman, was there in the afternoon. Even though the volunteer didn't get to "do" much, sometimes it is just nice to have someone there to talk with. Or to help with little things as he is stuck to the bed trying to make The Boy feel just the tiniest bit better.

This has been such an ordeal. Made more difficult by the fact that I have barely been involved in The Boy's care this time, and I think that this has been one of the worst stays ever. Nothing could be as bad as the Philadelphia stay, but due to the nature of this one and how tumultuous it has all been, not to mention the added fun of caring for Tiny Guy , this is on that level of awful.

It is made easier, however, by the nurses that take care of The Boy. They are so wonderful to him and to us, and the nurse manager even said that everyone is quite fond of us, his primary caregivers. It makes us feel as good as we can about the fact that The Boy has to be in there.

It is such a challenge, though...and we'll have a hell of a time once school starts again.

8 comments:

Sarah said...

my heart breaks for your whole family. big hugs to everyone!

mellohorn8d said...

Sorry to hear of the trouble with the port. Hopefully things will only keep getting better from here onward. All the best!

Sarah R said...

I'm sorry it's so hard right now! My heart just breaks for all of you......

Kinalau said...
This comment has been removed by the author.
Kinalau said...

Keeping you all in our prayers, as always.

Rebecca said...

Oh goodness, I am SO sorry that all of this is happening! I certainly hope that things start getting easier for you all. Lord knows you all deserve it.

gillianj said...

Hope the port causes no further problems. It must be exhausting for you, looking after Tiny Guy and worrying about your older son at the same time. You're in my thoughts.

Good medical staff must be a real comfort, and a blessing when you can't be with David all the time.

JC said...

more HUGS for you all!!!! XXXXXXX