He is going to get blood and platelets today. His hemoglobin dropped from 7-something to 6-something in a day, and he only just got platelets on Thursday. His white count is .2, was .4 yesterday, was .2 the day before...so basically nothing.
Still with the fever. Grandma came last night and ended up staying with The Boy, and she said that his temp got pretty high. They did the usual thing, with more cultures.
This now makes three antibiotics (Cefepime, Vancomycin, Flagyl) that are doing nothing for him, making him sicker, and maybe possibly are fighting off other things.
It's just a holding pattern. Everything just keeps on going the same way. And again, still within the realm of normal for the oncology team. Not only that, but we know that other kids have it worse.
Doesn't mean that it isn't unfair to The Boy. Also doesn't mean that we don't have the right to get angry about people that don't get it and expect us to cater to them.
2 comments:
So sorry Molly. I wish I was closer so I could help you out. Is there anything I can do this far away? Send David a book maybe?
I am so frustrated for you guys, and I wish I lived closer so I could help. Many hugs to you!
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